People affected by SED can tell their stories and we need support for the translations.
We need translators, Luxembourgish <-> French and Luxembourgish <-> English. There will be patients who will talk about their medical experiences, a doctor who will speak, a physiotherapist etc. and we will have a moderator. We don't know how many people will come.
Informer et sensibiliser le grand public sur le syndrome d’Ehlers Danlos. Contribuer à la diffusion des informations concernant le dépistage et les méthodes de traitements du syndrome d’Ehlers Danlos. Informer, conseiller et soutenir les personnes atteintes du syndrome d’Ehlers Danlos et de les aider tout comme leur famille et leurs proches.
18 Rue des Champs , 4431 Sanem
+352 621 662 063
https://www.facebook.com/edsletzebuerg
https://edsletzebuerg.lu
We need translators, Luxembourgish <-> French and Luxembourgish <-> English. There will be patients who will talk about their medical experiences, a doctor who will speak, a physiotherapist etc. and we will have a moderator. We don't know how many people will come.